Hey there!
Hi, I’m Jade, and I’m very passionate about sharing mine and my families life with hidden disabilities. I want to raise awareness of my conditions and my children’s conditions, as well as life for my husband as my full time carer.
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https://www.instagram.com/invisiblydisabledme/
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From the blog
- Welcome to my blog.Welcome to my blog. I will be blogging about my illnesses over a few days to give you an insight into my pain and disabilities. Once I’ve blogged that, I will blog about day to day life and challenges we face with myself, my husband and our children. I hope this helps people understand aContinue reading “Welcome to my blog.”
- ChildhoodSo in my early years, one of the first things I really remember was wetting the bed a lot, and being told I smelt of urine despite being constantly clean, washed and in clean clothes. This really didn’t start effecting me until I got into juniors school, where I was too embarrassed to speak upContinue reading “Childhood”
- My auntie helped me speak up about my incontinence.So at 18, I finally hit rock bottom with my bladder Incontinence. I felt to embarrassed to tell anyone, except my auntie. She was so amazing and understanding and advised me to speak to my GP. She done so much research online and really helped me to not feel so embarrassed. I finally spoke toContinue reading “My auntie helped me speak up about my incontinence.”
- Glandular feverOn the 18th December 2008 I came down with glandular fever. I was extremely ill. I had the most horrendously painful and swollen throat, I had a bad fever and was very very tired. I had to make my way to London to catch up with a friend and see Madness. Anyone who knows meContinue reading “Glandular fever”
- My Horrendous Back Problems.In 2011 during my pregnancy with my eldest son I suffered with sciatica for the first time. I had no idea what it was, but it was like zaps of really bad pain that stops you in your tracks. During labour, I opted for an epidural (which failed as it was put in too lateContinue reading “My Horrendous Back Problems.”
- My bladder Incontinence.Carrying on from my previous blog about my incontinence issues. After having no luck with the first consultant who put my bladder Incontinence down to caffeine, I moved to Weston Super Mare a couple of years later, where my GP decided to refer me to the local hospital for tests. Not much was done inContinue reading “My bladder Incontinence.”
- Gallstones led to chronic pain diagnosis.Not long after I had my eldest son, I started experiencing what I was repeatedly told was heartburn/indigestion. Friends advised me to drink milk and take gaviscon which I did and sometimes it would ease up but not go. The pain would often get so severe that I would sweat, cry and be sick withContinue reading “Gallstones led to chronic pain diagnosis.”
- My diagnosis with Hidradenitis suppurativaIn 2013 I experienced a painful boil under my armpit. I’d always suffered with in-growing hairs, so I didn’t think anything of it, other than it was quite big and painful. So that was that. In 2016, just before and after our wedding, I noticed these boils appear in other places. Not as big, butContinue reading “My diagnosis with Hidradenitis suppurativa”
- Hemiplegic migraine and migraines in general.Since around 2016 I’ve been suffering from headaches and migraines. In September 2018, those headaches were taken to a whole new level, I don’t wish anyone to ever experience! The night before travelling to London for one of my close friends birthdays, I had very very little sleep. About two and a half hours toContinue reading “Hemiplegic migraine and migraines in general.”
- ME/CFS and how it ruined my career and my life!If you’ve read my blog so far, you will have read that in December 2008 I came down with glandular fever and was extremely ill. Now I don’t know about you, but did you know glandular fever is caused by the Epstein Barr Virus and the Epstein Barr Virus can leave you with life changingContinue reading “ME/CFS and how it ruined my career and my life!”
- Appendicitis wasn’t what we thought it was.Late April 2019, I began getting some stomach pains. Just the week before, our eldest was complaining of similar pain, so I just put it down to maybe catching a bug. Later that evening the pain became intense, I became quite disoriented and I felt extremely sick. My husband got worried and called 999. TheyContinue reading “Appendicitis wasn’t what we thought it was.”
- De QuervainsEarly hours one morning in early 2018, I woke up crying in pain with my left thumb. I thought I’d broken it again, in my sleep. Back when I was 15, I had an accident at school. I was sat on the field, with my arms back and hands out, and some kid tripped overContinue reading “De Quervains”
- Our eldest son’s ADHD.In 2016, our eldest son was 5 years old, and we started noticing he was rather hyperactive and he lacked concentration. But being as he was only 5, and our first child, we thought this was just normal behaviour. Late 2017, we noticed that he lacked major danger awareness skills that you would expect aContinue reading “Our eldest son’s ADHD.”
- Our middle son’s talipesWe fell pregnant with our middle son, and we had a rocky start when we went for our dating scan (around 6 weeks) and our sack was empty. We had the longest week wait to have another scan to see it there was a little baby in there. Luckily there was. The pregnancy was goingContinue reading “Our middle son’s talipes”
- What’s life like?So now I’ve covered everything from my illnesses and disabilities and those my children have, I thought I would cover what a typical day scenario is for us as a family. It’s only been since early 2021, that I really started to engage with how my body was feeling and the patterns I was noticingContinue reading “What’s life like?”
- Why it’s so annoying when we can’t get a disabled parking space.When we plan to go out anywhere, disabled bays are an essential part of making our lives a little easier. Disabled bays are designed to give disabled people more space to get in and out of their vehicles, not only that but to also get their mobility aids out of their vehicles with less issues.Continue reading “Why it’s so annoying when we can’t get a disabled parking space.”
- I made a big decision.As a young, 32 year old, with young children, it’s been very rare that I would allow my disabilities and pain to be seen by them. I would use my crutches, but I was so extremely stubborn when it came to my mobility aids. Mainly because I didn’t want the stigma around disabilities to effectContinue reading “I made a big decision.”
- Had enough of this pain.So I finally spoke to my GP after calling reception and begging them for some help. My backs not been great since January but the passed few weeks, the pain is horrific. My legs are aching, feeling like jelly, and I’m getting pins and needles in my feet. My right side hip/pelvis and hip areContinue reading “Had enough of this pain.”
- Being asked to be a story teller for Scope Charity.Last week, I got a really exciting email from Scope (who’s work is admire so very much), asking if I’d be interested in speaking with them and becoming a story teller for them. Well the answer was obvious. As someone who’s suffered the stigma more than I can explain, giving those with disabilities, like myselfContinue reading “Being asked to be a story teller for Scope Charity.”
- Our middle son’s talipes has relapsed.Sadly, we went for our middle son’s 7 year review. (How it’s been 7 years I do not no!) and we didn’t get the answer we wanted. Every year we have to go in to see how his foot is doing. We’ve been doing this since he was born but the yearly consultant appointments startedContinue reading “Our middle son’s talipes has relapsed.”
- So much going on.Well I’ve sat down and realised why I’m probably constantly in a ME/CFS flare. We’ve got so much going on at the moment. As your all aware by now, my back is really bad and I’m now waiting to be sent back to my spinal consultant which could take about a year. On top ofContinue reading “So much going on.”
- Our housing situation.The back story is this. We were private renting until 2017, when the house we were renting and put a lot of money into (as we were told it was a long term let up to 15 years) the landlord wanted to sell. Because I am disabled, he managed to get a lot of workContinue reading “Our housing situation.”
- Becoming a story teller for scope.Yesterday I did a Q&A over the phone for scope charity. Mainly talking about my health, the boys health and the way in which the cost of living crisis is effecting us and millions of other disabled house holds. For me, this was such an important thing to do. I’ve seen a lot of workContinue reading “Becoming a story teller for scope.”
- My shoulder lipoma.On Saturday, I had to go into hospital to have an MRI scan on my shoulder. I found a lump about 4 years ago and as you can imagine, I panicked somewhat. I went for an ultrasound and was told it was a fatty lipoma. About 3 months ago, I noticed it had grown aContinue reading “My shoulder lipoma.”
- I’ve had a breakdown!As a lot of you will know from my previous posts, I suffer with a chronic anxiety and fear of death. This effects me by constantly worrying about my children, husband, family and friends as well as myself. Last night, I think I started to realise this maybe more depression than just a phobia. I’veContinue reading “I’ve had a breakdown!”
- Day 1. 19/11/22I started taking my antidepressants Friday night. I must admit I’m scared I will feel worse as suggested. But it’s a start. My husband is keeping a close eye on me for any change. He notices things before I do about my health, so I know I’m in good hands. I slept well, and haveContinue reading “Day 1. 19/11/22”
- Day 2. 20/11/22So had a late one last night, so much for the good night sleeps I was talking about. Went to bed and just struggled to dose off, then as soon as I did, little man started crying and had to be up at 7:30 to get ready for our vicars retirement service and party. TheContinue reading “Day 2. 20/11/22”
- Day 3. 21/11/22Good morning, up early, baby fed and down for his morning nap. Got a few things I need to do today, sorting eldest medication out, speaking to the council about moving. It’s all systems go atm. Today is also one of my best friends birthday. I hate living so far away from her, but she’sContinue reading “Day 3. 21/11/22”
- Day 4. 22/11/22I feel very tired today. That’s likely because we went out Sunday. All that excitement to go out and socialise hits my ME/CFS hard. Today I’ve been able to write out what my dark thoughts are without making my blood run cold or starting to panic, which is a huge improvement. The antidepressants I’ve beenContinue reading “Day 4. 22/11/22”
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About Me
Hi, I’m Jade, I’m 32, a mum of three and a wife, passionate about tackling ableism, and highlighting hidden disabilities. I have ME/CFS, Fibromyalgia, Facet joint disease, Degenerative disc disease, Herniated discs, De Quervains in both wrists, Bladder hypertrophy, Hidradenitis suppurativa and I’ve also had a Neuroendercrine cancerous tumour in my appendix. Our eldest has ADHD and suspected autism, and our middle son has Talipes (clubfoot). So this is our life living with hidden disabilities. I have used online research for my information on mine and my children’s conditions to better explain including links.
Invisibly Disabled Me 